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" I’m pretty sure no one who is “healthy” understands that being sick is a full time job. I don’t have the time or energy to think about fun things or have the capability or freedom to spend time chatting about nothing. When your chronically ill your days are completely regimented, from the moment you wake, around managing your symptoms and self care. There is no room for fun or the unnecessary. My days consist of sorting out supplements and/or medications for the day, making a concoction of medicinal teas to sip on throughout the day, preparing meals by scratch from the few foods that I can tolerate, feeding the animals, completing whatever house chores I’m physically able of accomplishing that day, meditating, stretching and/or fulfilling other therapeutic exercises, connecting online with others who are struggling, documenting side effects of current medications/treatments, trying to decide and decipher what is a new symptom and what is a side effect, resting, resting, resting, worrying about finances since I had to quit my job due to my illness, getting outside for a prerequisite 15 mins of sun for vitamin D supplementation, going to therapy, emailing doctors to make sure my new symptom isn’t going to kill me, making and rescheduling doctors appointments, mourning and grieving for my pre-illness life, spending time on the phone arguing with insurance, researching the next and best in the medical world, both conventional and alternative, to try to cure myself. This is one example of a day in the life of someone with Chronic Illness. And these are the things I expect, not to mention the unexpected that is thrown at you everyday that you can’t plan for. And all of this, up until recently, was in unison with actual full time employment. This is not normal, this is not living. I can’t even remember what “healthy” people do. I can’t imagine what one does with so much freedom, free time, and energy to do things simply for pleasure. "
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" Go to bed: Exhausted, Wake up: Exhausted, The whole day: Exhausted. "
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